NF Champs

Our NF Champs are chosen for their strength, courage, and happiness despite difficult circumstances. They are the reason we keep pushing further to find treatments and a cure for neurofibromatosis. View their stories or upload your own and join us in the fight to stay #NFstrong.

Kelly De Hart - Age:

Hi! My name is Kelly, I am 26 years of age, and I learned I have NF 2 when I was about 7 years old. NF2 has left me with deafness, facial and vocal paralysis, balan...

Brodie Curtis - Age: 4

Brodie’s Fight! Brodie was diagnosed with NF1 at 9 months old when his AMAZING pediatrician noticed cafe au lait spots developing on him. We though he just had several birthmarks. After many specialty visits and genetic...

Kyle Krawchyk - Age: 8

...ticed that he had many "birthmark" type spots, a larger head, and a slightly bowed right leg. It concerned us a great deal, and we brought it up to his pediatrician at every visit. At his 4 month check up, his pediatrician brought up neurofibromatosis, and started us on our path to find out some ans...