About the NF Network:

Neurofibromatosis Network was founded in 1988 as a 501(c)3 non-profit organization to join together several independent state and regional NF groups wishing to work together on national projects.

The Mission of the NF Network is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF.

We do this by:

  • Promoting federal funding of neurofibromatosis research through the development of a grassroots advocacy program
  • Working closely with members of the House and Senate to seek increased funding for research through the National Institutes of Health (NIH) and the Department of Defense Congressionally Directed Medical Research Program (CDMRP)
  • Publishing Network Edge which highlights medical and research updates
  • Investing in the financial and promotional support of NF research
  • Supporting Camp New Friends, an annual NF children’s camp
  • Sponsoring educational programs for families affected by NF
  • Maintaining a Find A Doctor national referral database
  • Assisting in development of local NF communities

Learn More