About Our Events

#NFStrong events take place in communities nationwide. These inspiring events create strong bonds that build a supportive NF community. The goal of these strong communities is to rally together and become one great voice in finding affective treatments and an eventual cure for NF. The events are a great way to involve family and friends, meet others who are affected by NF, while raising awareness of this disorder and to create funding for NF research. Take your first step towards a cure by finding, registering, and then fundraising for an event near you!


Event Activites

Join us at #NFStrong events for fun, food, face painting, a raffle with fabulous prizes, NF tattoos, NF Champion medals, top fundraising certificates, and new friends.

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We’re making strong progress

$22,538.00


Our Goal

$100,000.00

Contribute Today

Upcoming Events

#NF Strong events happen throughout the country. Find one near you!

All Events

Upcoming Events

#NF Strong events happen throughout the country. Find one near you!

All Events

TOP 5 INDIVIDUALS See All

Name Raised
Karen Gunsul $2,350.00
Kaymee Phillips $1,683.00
Kelly Grieshaber $1,120.00
Jerry Thompson $1,000.00
Excel Constructors $1,000.00

TOP 5 TEAMS See All

Team Name Raised
Team Tatersaurus $3,012.00
Nickel's Luckybugs for NF $2,330.00
Angel Fish $1,381.00
Many Faces of NF $1,242.00
Riley Bug 1 $1,170.00

Meet Our NF Champs


Their strength, courage, and happiness despite difficult circumstances. They are the reason we keep pushing further to find treatments and a cure for neurofibromatosis.

Want to see an NF event in your area?


Our NF Events are an excellent way to build the NF community, raise money to fund research, and to spread awareness. We are always looking for individuals who are driven to engage with their locale community and help organize events. If this describes you take a moment to fill out an interest form and join us in the fight to stay #NFstrong.